Thursday 21 August 2014

Back to work

After an 8 week break, I returned to work.  Used to work 8.30-11.30.  But new hours say 8.15-11.45.  It went ok.  An easy way to settle in but it was a bit hard work in the last 30 minutes.  I came home and had some lunch then bed for a couple of hours.  Really struggled about tea time to stay awake.

But I've done it, returned to work.  Don't know how things will go, we'll have to wait and see!

Sunday 17 August 2014

August

So we're now in August.  The children have returned to school and I am due to return to work on Thursday.  Luckily it's just half a day.  But it will probably still floor me as I last worked, 54 days ago.

In that time I have received my award for PIP and have applied for a Blue Parking Badge.  Am awaiting the badge arriving.  

Reading through the award, it makes me sad to see what my life has become.  I've already had a snooze today and I don't seem to be able to make it through the day without a wee snooze to help me out.

Pain levels have been high this week too.  The weather is changing quickly here but its not helping my pain.  

So here goes... having to get ready for the week ahead.

Sunday 10 August 2014

About Me

At the age of 12, I was diagnosed with Glandular Fever, I would go on at 16 and 18 to have it again.  I never felt full of energy and regularly would feel run down.  I often had pain in my body which couldn't explained.

In 2000, I became a mum to a beautiful little girl.  She was perfect in every way and she slept brilliantly.  But despite that, once again I was constantly tired and blood tests never showed anything.  So I just continued on, struggling with the tiredness.

In 2002, I became a mum again to a beautiful wee boy.  For 3 and a half years, he didn't sleep.  I became used to being awake at periods during the night and even when he did finally sleep all night, I didn't and I constantly felt shattered. 

In 2008, I upped my days at work for a short 16 week period.  By the end of it, I was on my knees feeling so tired, in pain and just had enough.

At the begining of 2009, I went to the GP.  I just felt terrible again.  It was a locum I saw and she wasn't the best but she sent me for bloods to be done.  I managed to get an appointment with my own GP, who suggested it may be a ME type condition and arranged another appointment for me.  At the next appointment Fibromyalgia was diagnosed and I was referred to physio.

The physio had no clue what to do with me, but referred me to a charity called the Thistle Foundation.  It was there that they gave me support through a Lifestyle Management course.  The course wasn't designed to cure me, but to help me learn how to put myself first, and stop the spiral down to chaos and not being able to cope. 

5 years down the line, I have a good online support group of lovely friends but I still get people who don't understand and comment on how I look fine and that there is nothing wrong with me.

I'm starting this blog as a place to be able to put my thoughts about Fibromyalgia and how it is affecting my life and family.